Spina bifida is a birth defect that affects the spinal cord. One in every 2,758 births in the United States results in a child with Spina Bifida (CDC). Spina Bifida happens early in pregnancy, often before a woman finds out she’s pregnant.

Symptoms can include hydrocephalus, bladder and bowel disfunction, difficulty walking, eating difficulties, and learning disabilities. Each child has different symptoms ranging from mild to severe.

Having a child with spina bifida impacts the whole family unit. In a poll of over 100 families who have children with Spina Bifida, Ellavation discovered that family time, leisure, community, and financial resources are all listed as major needs.

In a follow up poll of 100 families affected by Spina Bifida, caretakers reported lack of finances and handicap accessible options being major barriers for families

Ellavation works to spread love to families by offering either experiences or financial assistance to help improve quality of life. We can’t’ do it alone!